
I love this photo of our son Elton. Not only because he looks so darn beautiful, but because the picture, to Ben and I, is symbolic of the struggles Elton will face ahead of him. Elton has a long bridge stretched before him, with a river to cross and haphazard weather conditions.
Our little man is Autistic. Elton turns 4 next month and although I started noticing little patterns from a very young age, Elton was giving me a sign about Autism from only a few hours old. He hated to be wrapped up in his blanket. Ben and I actually joked on the day we were to be discharged. We were lined up with other Mum's, all pushing our little baby go-carts (cots on wheels) ready to face the doctor for our discharge. Babies were wrapped and swathed in blankets and there was our baby, in a singlet and nappy, no blanket looking completely disheveled.
You may of just had a baby and think "My baby hates being wrapped! Some thing's wrong!" Well it's a sign, but it won't be relevant for your baby. All Autistic children are different. The best description I have heard was that you might have a group of children standing in front of a bus and the bus hits them. Every child will sustain a different injury. Same with Autism.
Our child is extremely loving. Some Autistic children are not. That said, Elton can only be hugged for a certain amount of time, before he pulls away. Some days I wish he would sit in my arms for hours.
I don't want this blog to become all about Autism because there is so much more to our family. I don't want people to see Autism first when they meet or read about Elton and then see him. As my oldest friend Marie-Claire said "He is Elton and then he had Autism."
I also don't want to talk about it here like I am some person who knows it all. I don't. I use this blog as a light form of escape. A place to post lovely photos or talk about holidays or new places. It's also a topic that is about my son, and he might feel strange about it when he is older. Or maybe not, but it should be his choice.
We have been through the process of diagnosis for Elton since February this year. This is not something that happens overnight. It is a long and slow process and you need to be a team. No point in losing it or getting angry at your best players. Keep the team strong and moving forward.
We also had an assessment completed on our son a few weeks ago which gives him a ranking of where he sits on the Autistic Spectrum. Much like colours of a rainbow...red might be very mild and blue is very high. The psychologist placed Elton right in the middle.
The example of having a strong team keeps surprising us. Ben and I are reading all we can, trying new techniques and basically trying to be one step ahead of our son and be aware of what can be a trigger for him and nip it in the bud before it becomes out of control. We get by and we have a great life. We are happy.
For Elton to be placed in the middle was a surprise for us because we are coping. We didn't think we would be able to cope this well if our son had a greater disability, but we are finding out that we can cope. The best compliment I ever received was on the weekend when Ben's Mum, Mummsey said to me "you are the best mum I have ever known."
Lesley will never know what that comment meant to me, and all the times I have cried in the shower or with my head under the pillow at night wondering if I am doing things the right or the wrong way.
Elton has difficulties but we will work through them so that he can always be the happy child he already is. We know there isn't a cure, but you can learn to live with it and achieve many great things and be happy. That's all we want him to be. Happy.